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NewsSunday, April 15, 2007 9:05 PM CDT
McLean County expanding autism services
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BLOOMINGTON - The autism alarm has sounded and McLean County is responding.

Organizations that assist families with autistic children are increasingly busy as more young people are diagnosed with the complex disorder that is characterized by difficulties with communication and social skills, and repetitive behaviors.

"We've definitely seen an upsurge in requests" for information on diagnostic testing and services, said Jacquie Mace, president of the Autism Society of McLean County.

"The need for autism services continues to grow, not just locally but nationally and internationally," agreed Erin Rogers, vice president of program services for Easter Seals of Peoria and Bloomington.

The U.S. Centers for Disease Control and Prevention said in February that one in 150 American children have some form of autism, up from the previous estimate of one in 166. That would make autism the most prevalent disability in the country, Rogers said.

Easter Seals and The Baby Fold, based in Normal, are among several organizations that are increasing their services to families confronted with autism.

Meanwhile, the Autism Society of McLean County, Easter Seals, Baby Fold, The Autism Program, Marc Center and Illinois State University are leading the local effort to get agencies to collaborate as the demand for autism services grows.

Agencies and parents began meeting late last year and have developed the McLean County Community Autism Plan. Work teams of parents, service providers, educators and health care professionals are meeting to put the plan into action.

The program calls for work in four areas:

w Developing a family and community autism resource center.

w Establishing a protocol for diagnosis.

w Comprehensive training for "front-line workers" such as teachers and firefighters who may encounter individuals with autism.

w Increased employment opportunities for youths and adults living with autism.

"I'm excited about the possibilities for this community," said Mace, whose 10-year-old son, Austin, has autism. "We want our children to be independent adults" and the increased collaboration among Twin City area agencies should help.

"I see this as building a model for other communities and for other disabilities," said Mace.

'We didn't know where to go'

David and Kristi Warner of Bloomington have a 6-year-old son, Joey, who has high-functioning autism. He is in a special education kindergarten class at Pepper Ridge Elementary School and gets speech, occupational and feeding therapy at Easter Seals.

But when Joey was diagnosed at 15 months old, "we didn't know where to go and what was available," David Warner said.

"I think it's a great idea," he said of the community autism planning. "Having a place to go for information is crucial, and networking with parents is huge."

"There are no silver bullets" to fight autism, so what's needed is a variety of resource and strategies, Warner said.

Dianne Schultz, The Baby Fold's director of academic services, agreed.

"We have been very excited about the prospect of networking in a more seamless approach to assist families with autism," she said. "There are pockets of services, and families sometimes have trouble" determining which organization provides which service, she said.

Finding answers

Getting answers to parents quickly is crucial because the sooner a child with autism is diagnosed and begins therapy, the better that child will do in the future, Rogers said.

The resource center will be located in the new Easter Seals Service Center at 2404 E. Empire St., Bloomington. It won't open until fall, but the facility will be discussed during tours at the service center's open house from 4 to 6 p.m. Tuesday, said Jim Runyon, Easter Seals grants team leader.

Meanwhile, the Autism Society will open an office in the service center in May, Mace said. The office will be across from the future resource center.

"We want the resource center to be a one-stop information and referral site for people with autism across the life span," said Runyon, adding the center will be staffed by a knowledgeable person and will include a lending library of resources with information about treatment interventions, schooling, vocational training and living skills.

Families had identified a need for a resource center, Mace said. "If you Google 'autism,' you'll get five million hits," she said.

Developing a diagnostic protocol also is important because every child with autism is different, Rogers said.

Easter Seals has an autism diagnostic clinic in Peoria and will open a location at the Bloomington service center in May to assist parents with diagnosis and development of a treatment plan, she said.

Easter Seals also is expanding its P.L.A.Y. (Play and Language for Autistic Youngsters) project and feeding services for autistic youngsters with eating problems.

Meanwhile, Baby Fold is expanding its Challenges education program for children with severe autism to Hammit High School, Normal, and is beginning a respite program for families, Schultz said.

While organizations such as Easter Seals have been paying for the increased services from their own budgets, House Bill 1661, which is pending in the Illinois General Assembly, calls for state funding of autism community planning, family resource centers and diagnostic services, Rogers said.




Local resources



-- The Autism Society of McLean County at

(309) 661-9440 or www.autismmclean.org, which provides resources and referrals for families, social and recreational opportunities for children, and community education

-- The Baby Fold at (309) 452-1170, which provides an education program for children with severe autism, a consultation program for public school teachers, and parent support group

-- Easter Seals at (309) 663-8275, which provides free developmental screenings for children up to age 3, and diagnostic and therapy programs




Easter Seals open house



What: Open house for the new Easter Seals Service Center

When: 4 to 6 p.m. Tuesday

Where: 2404 E. Empire St., Bloomington

Why it’s significant: The new building doubles the space available to serve children with disabilities and their families. Areas of growth include autism and cerebral palsy.

Autism planning: Increased collaboration among agencies that provide autism services will be among issues discussed during tours.

SOURCES: Erin Rogers and Norma Rossi, Easter Seals

Compiled by Paul Swiech


Take a look
Joey Warner, 6, works with occupational therapist Christina Toohill on his motor skills Tuesday (April 10, 2007) at the Easter Seals Bloomington Center. (Pantagraph/CARLOS T. MIRANDA)
Joey Warner, 6, works with occupational therapist Christina Toohill Tuesday (April 10, 2007) at the Easter Seals Bloomington Center. (Pantagraph/CARLOS T. MIRANDA)
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Reader comments on this story - 13 total

Note: All views and opinions expressed in reader comments are solely those of the individual submitting the comment, and not those of the Pantagraph or its staff.

Jacquie Mace Cont. wrote on Apr 16, 2007 9:52 AM:

" There is tons of research going on through the Centers for Disease Control, the National Institue of Health, and other large organizations, through these hopefully we will find the reasons for the increase. In the mean time, let's try to take care of our children and adults who are already affected by coming together as a community and putting the supports in place that we can. Acknowledge the people like Paul who have made efforts to help in our endeavors and remember our children are children who will grow up to be adults, my son is Austin, he has autism, he is autistic, he's a little boy who we want a future for, the label is just a label...nothing more. "

Jacquie Mace wrote on Apr 16, 2007 9:49 AM:

" I would like to thank the Pantagraph and Paul Sweich for showing their support of the efforts to bring more awareness, services and support to our community. As much as we would all like to know the cause of why our children have this disorder, our first goal must be to provide the appropriate services that will help them to be a part of our community and independent adults. We can ask the why and how all day and play semantics with labels, but this still does not solve the crisis we're in right now. "

a parent wrote on Apr 15, 2007 11:24 PM:

" Great article! In case you are wondering how to support the Autism Society of McLean County, there is going to be an Art Auction and Dinner May 4th at the Chateau, featuring artwork by local children and adults with autism and other donated artwork by artists, some local. Please help our community by calling or going to the website. "

I appreciate a good debate wrote on Apr 15, 2007 9:57 PM:

" the New England Journal of Medicine will never admit it, nor will the American Dental Assocation with their mecury amalgam fillings, but they have been poisoning us all for years and have known it all along. I watched my nephew, a totally defenseless child, get a thimerasol based injection, and then turn into a zombie. My brother's marriage is all but over as a result and all I can do is ask why??????? "

thimerasol... wrote on Apr 15, 2007 8:32 PM:

" This article discusses the link between the thimerasol in vaccinations and the incidence of autism www.rollingstone.com/politics/story/7395411/deadly_immunity "

Leslie Feldman wrote on Apr 15, 2007 8:24 PM:

" Please read the studies from 1971 on autism explaining why vaccinations cause illness in autistic children because autism is the ultimate autoimmune disorder. Look up the autism prevention blogspot. "

Thimerasol vaccinations? wrote on Apr 15, 2007 6:15 PM:

" I thought there was no known reason for autism, as to how a child gets it. I aslo hear ther is unfortunately no known cure. I don't understand what these vaccinations are, and why would a doctor administer them if they are harmful? Thanks for any feed back "

to Wondering... wrote on Apr 15, 2007 2:12 PM:

" you are so so very right...as the uncle of an autistic child who was fine until he had thimerasol vaccinations, I am going to take the "supposed" link off of your comment, you CAN ask your doctor to have thimerasol free vaccinations and thank you for reiterating that. Chelly, bless you, I know the battle you go through everyday and keep up the fight and the rehab, you can still get results that are positive. "

Cmj wrote on Apr 15, 2007 1:34 PM:

" People First Language indicates that the term "autistic children" is offensive. The correct terminology is "children with autism." "

Christina Jenkins wrote on Apr 15, 2007 12:29 PM:

" I would like to point out that while I am thrilled that the Pantagraph has published an article that will help raise awareness of organizations that provide help for families affected by autism, I was disheartened that in the first paragraph the writer referred to children with autism as "autistic children." Kathie Snow writes, "If people with disabilities are to be included in all aspects of society, and if they're to be respected and valued as our fellow citizens, we must stop using language that sets them apart and devalues them." www.disabilityisnatural.com/peoplefirstlanguage.htm I highly recommend that everyone reading this article (writers and editors included) paste the above link into their web browsers and read Kathie Snow's article. For the online edition, the Pantagraph should change the wording in the first paragraph because the term used here is offensive. "

thank you easter seals wrote on Apr 15, 2007 11:34 AM:

" very informative article. My niece receives services from the easter seals. My family greatly appreicate them. "

Chelly wrote on Apr 15, 2007 8:41 AM:

" What a great article. I can attest both to the need of local services and the wonderful friends that the Autism Society of McLean County and Easter Seals have been to our family. Without their support I dont know how well we would be doing now. When you get the diagnosis its like everyhitng stops and you dont know where to go or what to do. Call Jacquie at Autism Society and she listens. She helped us immensely with her offer of the resource guide and answering our questions. "

Wondering... wrote on Apr 14, 2007 11:22 PM:

" I'm wondering about possible causes and the supposed link to thimerasol in vaccination. When having your child vaccinated, make sure to ask your doctor for vaccines WITHOUT thimerasol. Why take the risk? It's great that we have so many resources for these children here. Best wishes to all of those involved. "

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