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| NewsSunday, April 15, 2007 9:05 PM CDT |
McLean County expanding autism services
BLOOMINGTON - The autism alarm has sounded and McLean County is responding. Organizations that assist families with autistic children are increasingly busy as more young people are diagnosed with the complex disorder that is characterized by difficulties with communication and social skills, and repetitive behaviors. "We've definitely seen an upsurge in requests" for information on diagnostic testing and services, said Jacquie Mace, president of the Autism Society of McLean County. "The need for autism services continues to grow, not just locally but nationally and internationally," agreed Erin Rogers, vice president of program services for Easter Seals of Peoria and Bloomington. The U.S. Centers for Disease Control and Prevention said in February that one in 150 American children have some form of autism, up from the previous estimate of one in 166. That would make autism the most prevalent disability in the country, Rogers said. Easter Seals and The Baby Fold, based in Normal, are among several organizations that are increasing their services to families confronted with autism. Meanwhile, the Autism Society of McLean County, Easter Seals, Baby Fold, The Autism Program, Marc Center and Illinois State University are leading the local effort to get agencies to collaborate as the demand for autism services grows. Agencies and parents began meeting late last year and have developed the McLean County Community Autism Plan. Work teams of parents, service providers, educators and health care professionals are meeting to put the plan into action. The program calls for work in four areas: w Developing a family and community autism resource center. w Establishing a protocol for diagnosis. w Comprehensive training for "front-line workers" such as teachers and firefighters who may encounter individuals with autism. w Increased employment opportunities for youths and adults living with autism. "I'm excited about the possibilities for this community," said Mace, whose 10-year-old son, Austin, has autism. "We want our children to be independent adults" and the increased collaboration among Twin City area agencies should help. "I see this as building a model for other communities and for other disabilities," said Mace. 'We didn't know where to go' David and Kristi Warner of Bloomington have a 6-year-old son, Joey, who has high-functioning autism. He is in a special education kindergarten class at Pepper Ridge Elementary School and gets speech, occupational and feeding therapy at Easter Seals. But when Joey was diagnosed at 15 months old, "we didn't know where to go and what was available," David Warner said. "I think it's a great idea," he said of the community autism planning. "Having a place to go for information is crucial, and networking with parents is huge." "There are no silver bullets" to fight autism, so what's needed is a variety of resource and strategies, Warner said. Dianne Schultz, The Baby Fold's director of academic services, agreed. "We have been very excited about the prospect of networking in a more seamless approach to assist families with autism," she said. "There are pockets of services, and families sometimes have trouble" determining which organization provides which service, she said. Finding answers Getting answers to parents quickly is crucial because the sooner a child with autism is diagnosed and begins therapy, the better that child will do in the future, Rogers said. The resource center will be located in the new Easter Seals Service Center at 2404 E. Empire St., Bloomington. It won't open until fall, but the facility will be discussed during tours at the service center's open house from 4 to 6 p.m. Tuesday, said Jim Runyon, Easter Seals grants team leader. Meanwhile, the Autism Society will open an office in the service center in May, Mace said. The office will be across from the future resource center. "We want the resource center to be a one-stop information and referral site for people with autism across the life span," said Runyon, adding the center will be staffed by a knowledgeable person and will include a lending library of resources with information about treatment interventions, schooling, vocational training and living skills. Families had identified a need for a resource center, Mace said. "If you Google 'autism,' you'll get five million hits," she said. Developing a diagnostic protocol also is important because every child with autism is different, Rogers said. Easter Seals has an autism diagnostic clinic in Peoria and will open a location at the Bloomington service center in May to assist parents with diagnosis and development of a treatment plan, she said. Easter Seals also is expanding its P.L.A.Y. (Play and Language for Autistic Youngsters) project and feeding services for autistic youngsters with eating problems. Meanwhile, Baby Fold is expanding its Challenges education program for children with severe autism to Hammit High School, Normal, and is beginning a respite program for families, Schultz said. While organizations such as Easter Seals have been paying for the increased services from their own budgets, House Bill 1661, which is pending in the Illinois General Assembly, calls for state funding of autism community planning, family resource centers and diagnostic services, Rogers said. Local resources-- The Autism Society of McLean County at (309) 661-9440 or www.autismmclean.org, which provides resources and referrals for families, social and recreational opportunities for children, and community education -- The Baby Fold at (309) 452-1170, which provides an education program for children with severe autism, a consultation program for public school teachers, and parent support group -- Easter Seals at (309) 663-8275, which provides free developmental screenings for children up to age 3, and diagnostic and therapy programs Easter Seals open houseWhat: Open house for the new Easter Seals Service Center When: 4 to 6 p.m. Tuesday Where: 2404 E. Empire St., Bloomington Why it’s significant: The new building doubles the space available to serve children with disabilities and their families. Areas of growth include autism and cerebral palsy. Autism planning: Increased collaboration among agencies that provide autism services will be among issues discussed during tours. SOURCES: Erin Rogers and Norma Rossi, Easter Seals Compiled by Paul Swiech |
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