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NewsTuesday, August 21, 2007 8:03 PM CDT
Chester-East Lincoln teacher dies of rare brain disorder
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LINCOLN — Classes in the Chester-East Lincoln school district have been canceled for Thursday to allow students and staff members to attend the funeral of a longtime special-education teacher who died of a rare, rapidly progressing brain disorder.

Connie Albert, 57, of Lincoln died Saturday night of Creutzfeldt-Jakob disease, said her husband, Jack Albert. Creutzfeldt-Jakob belongs to a family of diseases that includes the animal disease commonly called “mad cow disease,” according to the National Institute of Neurological Disorders and Stroke.

However, Illinois Department of Public Health reported that there are no confirmed or suspected cases in Illinois of the type of Creutzfeldt-Jakob disease (CJD) known as human mad cow disease.

There are various forms of CJD. In 85 percent of cases, called sporadic CJD, the cause is unknown. Another form, called variant CJD, has been linked to contaminated beef, which has not been identified in Illinois, the Department of Public Health said.

Albert said Tuesday he’s not sure how his wife got the disease, which affects one person in 1 million worldwide, or about 200 people in the United States each year. According to the neurological institute, the disease can’t be transmitted through the air or through casual contact.

“CJD is a devastating brain disease with no treatment and no cure,” Albert said.

“We lost a pretty special person,” Albert said. “Today, we’re being overwhelmed” with support from Connie Albert’s friends, family and co-workers, he said.

“She was always a happy woman,” he said. “She saw the good in everyone.”

Connie Albert began teaching in 1973 and had been with Chester-East Lincoln since 1994, said Jack Albert, who is in the heating and air conditioning business.

She was a special-education and remedial reading and math teacher for kindergarten through second grade, Chester-East Lincoln Superintendent Victoria Childs said. Chester-East Lincoln has about 320 students from pre-kindergarten through eighth grade.

“She was a very dedicated teacher,” Childs said. “She was loved by the staff. We are all grieving with the family.”

While teachers were at Chester-East Lincoln on Tuesday, students don’t begin the fall semester until today. A crisis team provided by the Tri-County Special Education Association will be at school today to offer emotional support to students and staff, Childs said.

Jack Albert said his wife’s illness began a couple of months ago with vision problems and high blood pressure. Within a few weeks, she became disoriented, medicines were no help, and she was diagnosed with the disease, he said.

Researchers believe that an unusual virus or another organism causes the disease, the neurological institute said. The disease has a long incubation period, perhaps as long as 40 years.

Albert said he hopes his wife’s death will prompt more research into the disease.

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Reader comments on this story - 18 total

Note: All views and opinions expressed in reader comments are solely those of the individual submitting the comment, and not those of the Pantagraph or its staff.

GoVegan22 wrote on Jun 23, 2008 12:47 PM:

" I was sorry to hear about this when it first happened. I was thinking about it again last night as I read "Mad Cowboy" by Howard Lyman, a former cattle rancher who is now vegan. The cattle association sued him, along with Oprah Winfrey, in the mid-'90s for their opinions about Mad Cow disease. I urge anyone interested in this topic to read "Mad Cowboy" -- at least the chapter about Mad Cow disease. A lot of the comments on this post are right on target. The government supports the meat industry, while putting Americans' health at risk. "

jack albert wrote on Feb 12, 2008 3:35 PM:

" six months ago we lost connie but her spirit will live on in our family and community thanks to all that helped us with support and prayers god bless you go panthers "

student wrote on Dec 12, 2007 2:24 PM:

" I am sure that you will miss s but we can not ve sad forever and you do not want us to either we will miss you very much from all the students at Chester East Lincoln "

friend wrote on Aug 28, 2007 3:14 PM:

" They can take spinal fluid as well... while you are alive .. to test for this. Her brother was the Logan Co. Coroner, so I would think he would know. It's the family's right not to have a autopsy. I'm sure they just want peace right now. Thoughts are prayers are with the family.. "

Sad wrote on Aug 23, 2007 4:18 PM:

" As someone who lost a dear husband from this horrible disease 3 years ago, I have become well educated in some of the intricacies of diagnosis. His symptoms were typical of sporadic CJD (all very vague at first starting with visual disturbances). A number of tests were performed in order to diagnosis this disease. There are radiological differences between Sporadic and vCJD (Madcow) including where in the brain the leisions start. The course of the disease is very swift as compared to mad cow (in our case diagnosis to death was 5 weeks). Autopsy results confirmed the diagnosis. In addition, the incidence of the disease is such that sporadic CJD, although uncommon, is common that vCJD accounting for most of the cases - there also is genetic and iatrogenic types and lastly the very uncommon madcow. Bottom line, this woman had sporadic CJD. "

Yesterday wrote on Aug 22, 2007 3:36 PM:

" they said it was mad cow, today they are saying it's not, I am really thinking that there is something going on here. I am kind of surprised that the Pantagraph is pushing this story to the back, is this going to be hush hush and no one will know the true story? "

No More Beef wrote on Aug 22, 2007 3:28 PM:

" I think it is weird that Illinois Department of Public Health reported that there are no confirmed or suspected cases in Illinois of the type of Creutzfeldt-Jakob disease (CJD) known as human mad cow disease. How do they know the form Connie Albert had wasn't from eating beef if they didn't do the test? Aren't their tests to tell which one she could have had? It's weird that no one wants to find out...I think it raises many questions. So sad that research should be done to raise awareness but those that could help are not examining all possibilites. "

Confuzed wrote on Aug 22, 2007 3:18 PM:

" How do they know that it isn't the form of mad cow you can get by eating beef if they didn't do the test/autopsy. You can't say that isn't the form from beef if you don't know. Shouldn't the test be done before the state declares a finding? This is an awful story. "

A concerned reader wrote on Aug 22, 2007 12:47 PM:

" My heart goes out to the Albert Family. I lost my mother to sporadic CJD in 2003. This disease is often mis-diagnosed as Alzheimer's, and so the actual number of victims is really unknown. At the time of my mother's death we were told that the only definitive diagnosis came from an autopsy. I do hope that Mrs. Albert's neurologist referred the family to the CJD Foundation (www.cjdfoundation.org) They are very helpful and compassionate, and want to create awareness of this devastating disease. "

Janine wrote on Aug 22, 2007 12:20 PM:

" We lost my Dad to this terrible disease 2 years ago on August 15th, just 30 days from diagnosis. My prayers are with you, Mr. Albert, and your family during this time of loss. I'm sure Connie was truely "ONE IN A MILLION" just as my Father was. Your memories will sustain you. "

CEL parent.... wrote on Aug 22, 2007 10:39 AM:

" Connie was a sincerely special woman. My daughter "graduated" from her reading program last year and can now read better than I ever thought possible. Today is the first day of school and I know it will be hard on all the students because she always went out of her way to say Hi and give a big smile to all the kids. She will be missed!!! "

Miss You wrote on Aug 22, 2007 8:50 AM:

" Connie was also a teacher at the Christian Church in downtown Lincoln for the Wednesday night kids club. My daughter was in her class ast year and loved her alot. She was a special and kind lady. My thoughts and prayers go out to her family and friends and all who knew and loved her. "

CEL Alum wrote on Aug 22, 2007 8:00 AM:

" My thoughts and prayers are with the family, friends and staff right now. My god bless you! "

Understand your pain wrote on Aug 21, 2007 10:33 PM:

" We lost my dear uncle to Creutzfeldt-Jakob disease several years ago. We'll never know the why or how of this devastating disease, just the sorrow of watching him waste away. Mr. Albert, you and your family and friends are certainly in my prayers at this difficult time. "

Chelly wrote on Aug 21, 2007 10:07 PM:

" I am so sorry for this family's loss and the srudents loss of a special teacher. "

in lincoln wrote on Aug 21, 2007 9:48 PM:

" my sympathy to the family "

I'm so sorry wrote on Aug 21, 2007 8:48 PM:

" for your loss. May God be with you and give you strength as you go through these next few days, weeks and months. It's a blessing that you're surrounded by so many who loved Connie. May the memories of her bring joy to all who knew her. "

Friend wrote on Aug 21, 2007 8:40 PM:

" You will surely be missed Connie. God surely blessed us with you and you are now with Him, watching over all over us. "

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